Changes post Thyroidectomy

Recently we became aware that the conditions can change. My spouse a few years ago, had a complete thyroidectomy due to more than a dozen nodes growing on the gland. At that time she was diagnosed as Hypothyroid, and treatments began up until surgery. These past few years post surgery (special thank to  Dr. Kerlin), my spouse was still being treated for Hypo.

So let me give you a brief rundown of past to present and now being treated for Hyperthyroid, without an existing thyroid at all.

  • diagnosed as Hypo (pre-surgery)
  • surgery, complete thyroidectomy
  • first medications were synthetic and generic, Levothyroxin
  • each check up the dosage was being increased
  • personal research provided the organic option of Armour
  • switched to Armour with slight dosage changes over the last few years.

So now its blood work time last month….fun right? Not! However, it was necessary as we were seeing changes that we could not explain. it turns out that after being on the higher dose of Armour, my spouses system jumped ship to being Hyper. This was something we never put any research into, because we weren’t dealing with that spectrum. The signs of suddenly becoming Hyper as we know them are:

  • drying and frizzing of hair
  • very dry skin
  • muscle cramping
  • insomnia
  • change in appetite
  • for women, missing cycles
  • fatigue
  • frequent bowel movement—perhaps diarrhea
  • heart palpitations
  • heat intolerance
  • increased sweating
  • irritability
  • mental disturbances
  • muscle weakness
  • nervousness
  • problems with fertility
  • shortness of breath
  • sudden paralysis
  • tremor/shakiness
  • vision changes
  • weight loss-but perhaps weight gain
  • thinning of hair
  • itching and hives
  • possible increase in blood sugar

All of this can be verified on www.endocrineweb.com. 

We have also learned that if any existing cells were still in the neck/throat after the removal of the diseased gland, that it can grow back again. We have also learned that the entire process will start all over again, as there is little to support that the gland will grow back healthy.

Below is a rendering of a healthy thyroid versus one with nodules growing.

healthythyroid_nodule32568691_s_0

Please be aware of any changes that you see, ask the questions that you hate to ask. As the partner or spouse of someone living with this disease, remember if the gland is having a tantrum basically, they will not feel good. If the medications are not properly prescribed they will not feel good. Its important to stay supportive as much as possible.

 

 

 

 

 

Advertisements
Posted in Thyroid issues for Couples | Leave a comment

Heat and Post Thyroidectomy

So over the last month or so, we have noticed that my partner (the thyroidectomy patient) has been off a bit, but with all the stress at work we were discounting a TSH check. As of the last 2 weeks we have both noticed the brittle dry hair returning and they dry cracking skin symptoms returning. The last TSH was 2.96, she is at her best from 0.5 to 1.5. I know that sounds minimal, but there is a noticeable difference. This could be due to work related stress, as there are huge changes coming to the company.

Another problem we have discovered is stinging insectes have a strong effect on those with no thyroid, when previously there was no allergy. So here is what happened today……

We were at an amusement park enjoying our eldest grandchild’s cheerleading competition (they took 1st by the way). In California our seasons of warmth have been lasting longer and longer over the last 10 years. Here we are in October walking in around in shorts and sandals. Anyhow, it was warm today but not an unbearable summer heat. As we were walking amongst the attractions with our younger grandchild in tow, my partner stumbled a moment and stated she thought she had been stung, but we saw no evidence of a sting. Now keep in mind we were in a major amusement park and its hot outside.

At first we didn’t really notice much, but while standing in line at a food vendor (in full sun), that the sting issues made themselves known. First off it was the shortness of breath, then the feeling of her entire body tingling like if your foot fell asleep. Then the narrowing of vision to there was none. I went for the park EMT’s. (still at this point we did not know there was a sting). The EMT’s were quick to respond, took vitals which were a tad higher than normal, diagnosed heat exhaustion and stated a ton of water, some food and rest in the shade for a while.

While all of this was great info, they gave us ice packs to body cool quickly, and went on their way. They did not know this is a thyroid patient on created drugs to make the loss of thyroid less impactful. We have noticed that even medical professionals cannot answer questions in regard to post thyroid problems. All of my partner’s and I knowledge comes from living through it and research.

We are still on amour (an organic drug) and it works best for us, but after almost 2 years, we are going to have to ask for an adjustment to a higher dosage. Amour is still better for us than the synthetic Levothyroxine, her body just does not accept the synthetic drugs.

All of this being said, a bee (or other stinging insect) mixed with the heat created a heat exhaustion effect. This is so all of you out there are aware of what a little insect can do if you are missing a thyroid. On the internet I found the following to be the symptoms of a now thyroid-less person and possible response to insect stings.

What Are the Symptoms of an Insect Sting Allergy?

Symptoms of a severe insect sting allergy (called an anaphylactic reaction) may include one or more of the following:

Posted in Thyroid issues for Couples | Leave a comment

Successful Medication

After some time now on the RX Compound named Armour, we are seeing positive results!!!!

We have begun a new weight loss program, and as those of you who are dealing with Hypothyroidism know, when ailing losing weight is near impossible. Well we are losing weight together.

To be clear here, it is not myself but my partner who has been physically dealing with Hypo, I just get the residual of being a part of it all.

Some notes about Armour:

  • You cannot forget to take your daily dose!
  • You have to take it on an empty stomach
  • You will notice within in a day if you have forgotten to take it as your symptoms will immediately return.

Best to you all!

 

Posted in Uncategorized | Tagged , , , | Leave a comment

It’s been a while

Hello Readers,

 

It’s been a while, but updates have been posted on the “not the patient” board.

Posted in Uncategorized | Leave a comment

Site updates

Hello All

 

We have updated just a bit. Please note that there are 2 new categories in the menu bar. We have broken out the posts of the Patient Perspective from the Not the Patient Perspective. This main front page, will feature tidbits from specialists, links to sites and general information as we come across it.

Posted in Thyroid issues for Couples, Uncategorized | Leave a comment

American Association of Clinical Endocrinologists

The American Association of Clinical Endocrinologists just posted the following to their Facebook page:

“Thyroid disease is more common than diabetes or heart disease. Thyroid disease is a fact of life for as many as 30 million Americans – and more than half of those people remain undiagnosed. Women are five times more likely than men to suffer from hypothyroidism (when the gland is not producing enough thyroid hormone).”

Posted in Uncategorized | Leave a comment

The American Association of Clinical Endocrinologists say…

Thyroid disease is more common than diabetes or heart disease. Thyroid disease is a fact of life for as many as 30 million Americans – and more than half of those people remain undiagnosed. Women are five times more likely than men to suffer from hypothyroidism (when the gland is not producing enough thyroid hormone).”

http://www.facebook.com/#!/TheAACE

Posted in Uncategorized | Tagged , , , , , , , | 2 Comments